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1/31/12

Forgot something!!

Guess I could've given you a weight and height update, huh?!?!


Ready...?     His weight is up to 21lbs 9oz and he is 31.25in tall!!!   He's growing out of 12mth clothing and into 18mth clothing.  Carter's here I come!! LOL  I LOVE there clothes!! I seriously could blow a large sum of money in there in one day!  And I would never hear the end of it from the hubby bc Tripp would have clothes and we wouldn't...hahahahah...

Appt updates.. several..

Things have been pretty hectic in the Johnson household as of late.  Since Tripp started walking about 2 months ago we have been chasing him nonstop! :o)  He's also had several appointments as well.. so I'm just going to list them out.

- Orthopedics:  We took him to see Dr. Mazur at Nemours for a 6 mth follow up with new xrays of his spine.  The first set didn't look too hot because they took them with Tripp laying down, which is how we normally do it. Once Dr. Mazur came in and saw that Tripp was walking, we had to do a new series with him standing up.  These came back and looked much much better! There was hardly any curve where the misformed vertebra were.  While Tripp has been growing bigger so have the vertebra and we got a new diagnosis for him. Instead of having "hemivetbra", basically the vertebra are broken halves that grow independent of each other and have a good chance requiring surgery, Tripp has "butterfly vertbra".  Butterfly vertrebra are completely intact but basically look like a butterfly and these almost never require surgery!  How awesome is that?! But if for some reason Tripp's did cause a curvature in his back, surgery is the only option because of the location of the misformed verterbrae.  They are in the upper thoracic are of his spine.  We are going back in March to meet with a spinal surgeon to get established so he can monitor Tripp's spine as he grows to make sure his spinal chord isn't being pinched.  

-Opthamology:  At the beginning of January, Josh took Tripp for an eye exam. Much to our surprise, Tripp is still very far sighted.  His eyes had improved some but not enough.  Dr. Khuddus didn't want to put him in glasses again because he refuses to wear them. So we are going to wait a year, take him back next January for another exam and go from there. 

-ENT:  Tripp has been battling ear infections since the Fall, so he is getting tubes in his ears this coming Monday, Feb. 6th.  We'll follow up with the doctor a month later for a hearing test.  I'm hoping he'll start trying to say more words once he gets all of the fluid out of his ears.  He has a very limited vocabulary right now. Momma, Dad, Ba (bottle or ball), no, mine, stop, bye bye... I think that's about it.  And we talk and read to him alllllll the time. I have a feeling speech therapy will be in our future! :o)

-Ped Surgery:  This was a bittersweet appointment for me.  We took Tripp in for a 6 mth follow up for his esophageal atresia.  Since he has been doing so well and having no choking issues from a stricture in the scar tissue of his esophagus, Dr. Islam discharged us from the clinic!  This is really really great! But made me kind of sad because Dr. Islam has been his doctor since he was 3 weeks old.  He placed Tripp's g-tube at 3 weeks so he could get my breastmilk and thrive.  He fixed my baby's broken esophagus so that he could live a happy normal lifestyle!! And when Tripp had complications from the surgery, he's the one who would go by to check on him multiple times during the day and call in the middle of night to check on him.  I'll never be able to thank him enough for what he did for my son!  I looked forward to our visits with him so he could see how much progress Tripp was making!   I was also very sad because his fellow, Dr Dickey had moved away because she completed her fellowship.  She was actually the first person we met on the surgical team and we loved her too!  Dr. Islam was kind enough to take a picture of Tripp and text it to her! I hope it brightened her day! :o)

On the therapy forefront, we have our annual IFSP review coming up to see if Tripp still qualifies for his therapies.  I'm pretty sure he does b/c he's on a 12-14 mth level for most things.  His therapist did her review last week to get ready for it and there were a few things Tripp hadn't started doing yet.. Like, standing up without pulling up on something, crouching down to pick up toy and standing up without falling over, walking backwards..    Well, apparently Mr. Man heard the laundry list of things he wasn't doing and started doing all of them about 2 days later.. LOL  Unfortunately, she can't change her evaluation but she can add some additional notes to it. :o)

So, that's pretty much it..  I'll let y'all know how our ear tube adventure goes! :o)